One of the most frustrating things I have found since being diagnosed with MS is that access to resources and up to date reliable research is few or far between. Don’t get me wrong, I read the articles that are published on a weekly basis which claim “The MS Cure is on its Way”, but then in reality when I go and speak to my neurologist about these new super-duper amazing life changing drugs and treatments, I’m told…”they haven’t been approved/they aren’t safe/they aren’t available…blah blah”. And quite rightly so, the media does love a good headline, and even when it comes to serious stuff such as incurable debilitating brain diseases, there is no exception!
So, this brings me onto an event, which is being held in the North West of England, on Wednesday 21st June at St Helen’s Rugby Club. It has been organised by the MS Society in conjunction with the Walton Neurology Centre of Liverpool. Basically in a nutshell, the cream of the crop neurologists will be presenting the latest research and findings (without any PR blerb) and it will give us a chance to ask questions, real questions, and actually get answers. Julie Henney, who is the Local Networks Officer for the MS Society in the North has been the driver behind bringing this all together, and it really is going to be such a pivotal event for people suffering with MS, or even maybe families/carers/friend of people who are.
I am honoured to have been invited to introduce the event on the day (I promise not to waffle and keep it short…) and we will be carrying out some research of our own and I will be on hand to answer any questions (from My Blonde Who Blogs perspective only!). I think this will be a great opportunity for us to bring together younger MS’ers to create a network for the North West…
An opportunity to have these VIP MS Health Professionals in one room does not come about often, so please click this link to register for your free place or share this post with anyone who you think may benefit…
If anyone has any questions then please email me at firstname.lastname@example.org or leave a comment on the post below.
As always, thanks for reading,